Role Of The Family Advocate

What is the role of the family advocate?

The role of the family advocate may vary with the needs of the family. Some families will have a family advocate, who is well versed in elder care.

Some families will not have a family advocate and have no one in their community who has specialized knowledge of how to navigate the issues surrounding dementia and senior care.

Other families have an extended family member or friend who can act as a family advocate. Some families may not have any of these supports.

The role of the family advocate is to:

• provide information and help members of the family understand their rights when dealing with staff who provide care and assistance

• provide support, feedback, and counseling to members of the family, so they are aware of their rights, whether it be right to remain or go home; rights to clear information; rights to comfort, dignity, and safety; rights to participate in decisions

• document all the interactions and encounters that take place between the family and the nursing home and support them in seeking a fair outcome, even when the outcome is not what the family might want.

What are the legal considerations in situations where there is an issue with a family member with dementia?

There are legal implications in these situations.

When a person is unable to make their own decisions, the person may be cared for in their home by a family member. This care may be funded by the state or through the home nursing home system.

There are laws about what people have to do when caring for a person with dementia, so family members are required to act in the best interests of the person.

When a family member or caregiver goes to a nursing home to care for a person with dementia, they are asking for legal protection. The legal relationship is different from taking care of a child, as the rights of a person with dementia are different and unique.

What should family members do when they are in an awkward situation with a nursing home or other facilities?

These situations are difficult, particularly for family members who are only trying to provide care.

When people try to help a family member or loved one get the care they need, they can face reprisals from the nursing home.

If a family member is unhappy with how the person with dementia is being treated or is feeling uncomfortable, the family member should contact the nursing home directly to discuss concerns.

Some facilities are willing to sit down and have a discussion with the family. Others may require the family to bring the problem to their attention by speaking with the staff first. If the staff are unwilling to meet with the family, the family member should consider having a lawyer contact the facility directly.

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